Adventure Travel Abroad

Jeff’s Journey (Nager Syndrome)

Jeff’s Journey (Nager Syndrome)


are you ready for the interview what do you want the world to know about you hi I am Jeff I am 34 and I was born with a disability called nagger Miller syndrome we have this screen right in front of us where we can see ourselves when you see yourself what goes through your mind I am always happy what is making you happy hanging up with you today my man oh you want to make it explode my man two legends and brothers have United welcome to SBS K we believe that everybody has a story that’s worthy of being heard when we listen to one another the world becomes a closer place and we all benefit together so without hesitation let’s meet today’s friend are we rolling we are rolling when somebody meets you for the first time what do you hope they think that your disability affect you just physically or cognitively as well just physically do some people ever falsely assume that it affects you cognitively – yes what would you like to say to those people I can do almost everything but need help on a few things what are a few of the things you need help with the bathroom routine or getting shirts on is that just because of the shape of your arms and hands when you go out in public do people ever stare does it affect you at all you always be open to somebody coming up to you and asking a question yes we ever tell anybody to go away no how would you describe the way you communicate when somebody’s talking to you and you’re typing on your device would you prefer for them to keep talking or do you want them just to stay quiet until you respond with your answer what was the toughest part about growing up with this syndrome I can’t travel around so low why are you able to travel independently I cannot do the airline seatbelts by myself if you had one wish what would it be to travel independently do you sometimes feel frustrated that you need to rely on others yeah is there somewhere you wish you could go everywhere would you rather have ten great friends or a million dollars be honest I don’t care now that defeat that defeats the whole question you need to pick one what do you want ten great friends or a million bucks dude there’s no wrong answer the money you guys take the money and run well what would you spend it on a self-driving car how often do you think about how you want that independence of being able to travel almost everyday except when I am doing lift what are you most proud of yourself for I now take a lift after my doctor appointments I am proud that I can take lyft solo have you ever met a person you didn’t like why didn’t you like them they worried what did they do that was rude he said some nasty stuff to me do you feel comfortable sharing what they said mmm that’s fine we don’t have to talk about it do you like to focus on the positive huh tell me about the things in your life that make you happy my family and good friends can I give my brother in California and my cousin in New York has shout out this is your interview you can say whatever you’d like Kevin from for clobbering me and hockey I will get a win as revenge when people hear your story do you hope they feel sad no how do you hope they feel we have a lot of kids who watch our Channel if there’s a kid watching this who’s meeting somebody who looks like you for the first time what do you want them to know enjoy life do you find it’s best to approach life with a sense of humor why are things better when you’re sharing a laugh with someone it makes friendships what would you say is the best thing about you why do you always welcome new people I like to hang out what’s your favorite thing to do when you’re hanging out with a friend talking like this what are some things you hope people talk to you about I’m originally from Philly the home of the Philadelphia Eagles and I just have to say that I really enjoy it a few years ago when the Eagles beat the Patriots in the Super Bowl [Music] congratulations we will have revenge why are you such a big sports fan what is the most important thing in life to you family and friends that’s a great answer yeah I know you’re a positive guy and I love that about you but are there ever times when you feel sad you swear you never feel sad dude I feel sad sometimes everyone feels sad sometimes you never feel sad only when I was told nasty stuff I was both mad and sad I’m sorry you had to experience that Jeff you didn’t deserve that you deserve to be around people who are positive just like you and I’m happy that I get to be one of those people today hmm because my friend life is all about sharing a smile sharing a laugh and shared a pound with the people you care about thanks for watching SBS K click subscribe here to be part of our community then hit the notification bell below so you never miss a story you can even meet another friend here see you next time


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